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Upcoming Events
December 3, 2011
We will
hold our Christmas Potluck at St. Anthony's hospital on Saturday December 3, 2011 at 1PM. This will be a social potluck
meeting. Besides what people bring coffee and tea will be served. Please join us on Saturday, December 3.
Recent Events
24) October 22, 2011 We
held our Fall meeting on Saturday, Oct. 22, at the new St. Anthony's hospital. The primary discussion was on insurance
issues. Coffee and Tea was served. 23) July
16, 2011 On Saturday, July 16, we had a picnic next to
Sloans Lake on 17th Ave behind the old St. Anthony's hospital which had just closed. The weather was nice and the food
was good. We welcomed several new member's to our group. 22)
May 7, 2011 We held our regional meeting Prebsbyterian-St.Lukes
hospital in Saturday, May 7. Our speaker was Sancho, an OT from Florida who is working thru his own CIDP. Sancho gave us hsi
views both as a patient and as a occupational therapist. Coffee and tea was served. 21) February 5, 2011
We held our
Winter meeting at St. Anthony's Central hospital on Saturday February 5, 2011 at 1PM. This was an an update meeting and
discussion of our May regional meeting (we are currently working on the speaker) and volunteering at the 9News Healthfaire.
Coffee and tea was served.
20) December 4, 2010
Our
December potluck was held at St. Anthony's Central hospital on Saturday December 4. About 15 people (including two new
patients and their families) brought goodies and joined together to discuss the happenings at the International GBS/CIDP Symposium
in King of Prussia, Pennsylvania. The presentations were highly interesting and may be found at the following website (You
have to register the first time):
2010 GBS/CIDP Foundation International Symposium
19) October 2, 2010
Our
Fall meeting was held at St. Anthony's Central hospital on Saturday October 2. This was a meet and greet with our new
(and outstanding) Foundation liaison. The meeting was mostly informational and organizational in nature. Coffee and tea was
served.
18) July 17, 2010 On Saturday, July 17, the Colorado GBS/CIDP Support Group had a social outing in the form of a
picnic at Sloan Lake. About 15 people came out for a beautiful (and warm) day on the lake.
17) May 1, 2010 On Saturday, May 1, the Colorado GBS/CIDP Support Group held its annual spring meeting at St.
Anthony’s Central hospital. After introductions and background stories the group discussed the following topics: how
frequently we should have meetings; the nature of the meetings; ways in which members can help facilitate the meetings; and
outreach to current GBS/CIDP patients and their families. There seemed to be a general consensus among
those in attendance that we continue with 4 meetings per year. The group felt that it would be a good time
to ask the greater Colorado and regional group their opinions regarding the topics of support group meeting frequency and
volunteering. As such, we developed a survey that has been sent out on the listserve and is also available for download here.
Download the Member Survey
16) March 6, 2010 Our Colorado GBS/CIDP
support group met at St. Anthony's Central hospital in Auditorium A on Saturday at 2PM. Connie Hein spoke will speak and answer questions on managing life in a wheelchair and with a service
dog. Coffee and tea was provided.
15) December 5, 2009 Our Winter 2009 annual
holiday potluck/meeting of the Colorado GBS/CIDP support group took place at St. Anthony's Central hospital in Auditorium
A at 1PM. This was a social meeting with just friendly talk and sharing stories of history and treatments. Coffee and tea was provided by St. Anthony's.
14) October 3, 2009 Our Fall
2009 meeting of the Colorado GBS/CIDP support group took place at St. Anthony's Central hospital in Auditorium A. About
25 people introduced themselves, discussed the fun time they had with GBS and CIDP, and past, current, and possible future
treatments that they know about. We talked about vaccines no one seemed in too much of a hurry to go get vaccines against
the flu and H1N1. Coffee and tea were generously provided by St Anthonys.
13) May 2, 2009
The
9th Annual Colorado State and Regional GBS/CIDP Meeting took place in Auditorium A at St. Anthony Central hospital on Saturday,
May 2. The meeting started at 12:30PM and continued until around 4PM. The speaker was
Dr. Mik K. Stambuk of Neurological Consultants located here in Denver. Dr. Stambuk
gave us an excellent presentation that included a very informative introduction as to what exactly is GBS and CIDP followed
by how the body is affected by these diseases, current standard treatments, and finally trends in future research. Dr. Stambuk
openly and honestly answered any and all questions
that were posed by members of the audience. A copy of Dr. Stambuk's presentation is available by request just by
sending an email to this site's webmaster (Check the "Related Links" page). Coffee
and tea was provided by the hospital and one of our members brought a special cake to commemorate the event. A small photo
album can be found on the Photo Album page.
12) March 7, 2009 The early Spring Colorado
GBS/CIDP group meeting was held at in Auditorium A at St. Anthony Central hospital. About 32 people joined for good discussion
and lots of refreshments. Suzanne Hakar, the General Manager at Neurological Consultants attended and told the group what
the organization does and announced that Dr. Mik K. Stambuk will be our speaker for the May 2 state meeting (see above). Suzanne
fielded questions from the group that they would like to see answered at the May meeting. Our
group tried a new discussion format for this meeting: The attendees were broken into small groups of 3 or 4, talked for about
30 minutes, and then shared what they talked about with the group. Attendee feedback indicated that people liked the format.
Ann announced that the Foundation cannot afford to finance our 3 page newsletter
printing and mailing costs. Since the Foundation has already sent the labels (thank
you), the next newsletter will be distributed by snail mail. However, one our members
is organizing an email list by which future announcements and newsletters will be distributed to those who are email-viable
and snail-mailed to those who prefer otherwise. Donations to cover those mailings will be greatly appreciated. The group
email address is "GBS-CIDP@comcast.net". A link to this address can be found
on the "Related Links"
page on the left.
11) December 6, 2008
The Winter Colorado
GBS/CIDP group meeting was held at in Auditorium A at St. Anthony Central hospital. About 15 people joined for a nice potluck
of salad, homemade baked beans, and cookies and cakes. We welcomed two new patients and their families and compared our stories,
treatments, and experiences. Check the Photo Album page for some group photos of the event.
10)
October 4, 2008
A very interesting Fall Colorado GBS/CIDP meeting was held in Auditorium A at St. Anthony Central
hospital. About thirty patients and caregivers listened to a panel of nine caregivers discuss their experiences and views.
The panel presented their stories and then took questions from the audience. All in all, a very moving and emotional meeting.
9) May 3, 2008
The annual regional GBS/CIDP meeting of the Colorado GBS/CIDP Support Group was held at St. Anthony Central hospital.
The theme of the meeting was on GBS/CIDP Residuals. Jeff Raff, Ph.D., presented a very informative talk on the nature of residuals
and methods for coping with the pain, depression, and other uncomfortable affects.
Below (in one file) are notes from the presentation and also articles found on the web dealing with GBS residuals.
2008 Colorado GBS/CIDP Regional Meeting Notes (Click 'View Bookmarks' from within Adobe Acrobat for easier navigation)
8. April 19, 2008
ICRME GBS/CIDP Fundraiser: A fundraiser for the GBS/CIDP International
Foundation was held on April 19 as part of the Imperial Court of the Rocky Mountain Empire (ICRME) 35th Anniversary Coronation
celebration "Beyond Wicked.......a return to OZ". The event took place at the Four Points by Sheraton Denver Southeast
hotel. Tickets were $50 per person and included an open bar cocktail reception from 5PM-5:45PM followed by the Coronation
35 ceremony at 6PM. A good time was had by all at a similar event held last December (descibed in event #2 below).
7. March 1, 2008
The quarterly meeting of the Colorado GBS/CIDP Support Group was held today in Auditorium A of St. Anthony Central Hospital
from 2PM-4PM. Approximately 33 survivors (new and old), caregivers, and friends met and presented their stories of onset,
hospitalization, treatment, and the long recovery process. A short discussion and a request for ideas about future speakers
was made by Elaine. Jean L. discussed some recent interest by the EPA in the incidence of GBS and MS in the Conifer area.
Chris announced a fundraiser will be held for the GBS/CIDP Foundation on April 19 (see above for a copy of the announcement).
A short social hour ended the meeting.
6. December 6, 2007
We held our annual potluck the first weekend of December in the Birch Room at St. Anthony Central hospital. About 25 people
brought a lot of good food and good conversation. We were just catching up with how everybody is doing and what's new in the
GBS/CIDP world.
5. October 6, 2007
At our last group meeting on October 6, Kathy Hug, a pharmacy manager from Accredo Therapeutics (an infusion services
provider IVig treatments in Denver) present a very informative slide show on IVig--What it is and what it is doing in our
bodies. This is a timely topic and one that sparked much interest by a great many of our group members. A scan of the presentation
will be uploaded soon. Check back soon.
IVIG_Presentation_October2007
4. May 5, 2007
The Colorado GBS/CIDP Support Group held their annual statewide/regional meeting at St. Anthony Central Hospital in
the Birch Room. Registration opened at 12:30PM and the program began promptly at 1PM. Dr. Peter G. Hanson, a M.D practicing
in Denver who performs acupunture and rehabilitation and deals with pain management, was the featured speaker. Dr. Hanson
gave an excellent presentation on stress and how acupuncture is used to treat many types of ailments associated with GBS and
CIDP. Notes of the presentation are presented below.
Notes from the 2007 Colorado GBS/CIDP Support Group Statewide and Regional Meeting
3. March 3, 2007
A Colorado GBS/CIDP support group meeting was held in the Birch Room at 2PM at St. Anthony's Central Hospital. About
16 people attended including several new members and/or families of GBS and CIDP patients. We introduced each other, told
a little of our stories, and watched a short DVD on CIDP.
2. December 15, 2006
GBS/CIDP Fundraiser - A fundraiser was held in December by the friends of Sophia DeVille who contracted GBS in Nov
2006. Below are links to the announcement of the event.
Dec 15, 2007 Fundraiser Announcement
1. December 8, 2006 Potluck - The GBS/CIDP Support group met for a social potluck at St. Anthonys Central Hospital. The food
was excellent.
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